Our helpline will continue to operate as normal, and if there are any changes, we’ll let you know straight away.
We’re really excited about this move, it will allow us to support our members on an even greater level. Thank you for your patience and understanding while we settle into our new space
The British Sjögren's Syndrome Association (BSSA)
(now with the working name of Sjögren’s UK) was founded in 1986, as a registered charity, to raise awareness of the disease and support research into its cause and treatment. A self-help organisation with around 2300 members, the Sjögren’s UK is dedicated to providing mutual support and information to individuals affected by this disabling disease.
We have regional support groups throughout the UK whose members include sufferers and supporters who work together in helping one another cope with the day-to-day challenges of this debilitating and distressing condition. Sjögren’s UK also has a helpline, we distribute a variety of literature including an informative quarterly newsletter and we award an annual research grant. There is currently no cure for Sjögren’s and the cause is still unknown.
LATEST NEWS
Trustee Linda Stone Co‑Authors Patient Engagement Case Study
We are proud to share that our trustee Linda Stone...
read moreSpotlight on Sjögren’s – A Patient-Centered Real-World Study
We’re pleased to share insights from Spotlight on Sjögren’s, a...
read moreLiving with Dry Mouth: Turn Your Experience into Art
Join artist Emma Barnard for a free, all-skills-welcome creative workshop...
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LATEST FORUM POSTS
Sjögren’s Parenting Hub
This forum is for parents of children/living with Sjögren’s who wants to...
read moreSjögren’s under 40 Community
This forum is for anyone under 40 living with Sjögren’s who wants...
read moreBenefits for joining the Sjögren’s UK:
- Providing information and support to those affected by the condition
- Distribute a variety of literature including an informative quarterly magazine
- Operating a national members' helpline facility
- Hosting regular regional meetings throughout the UK
- Link members through our ‘make a friend’ scheme
- Annual medical meeting with talks from consultants and experts in Sjögren's
- Online members forum
- Full access to our informative website
UK membership
£30.00
Overseas membership
£35.00


